Research study about how parents cope with pregnancy and infant loss

please please participate.

http://www.surveymonkey.com/s.aspx?sm=looH_2b6MxKaw0s0yPl5zE0w_3d_3d

Who is Doing the Study and What is it For?
The study is conducted by researchers at the University of Michigan in Ann Arbor, Michigan in the United States. We are trying to understand women’s experiences with a pregnancy loss or loss of a baby and how women use on-line message boards after a loss. This will help us to design on-line programs to help parents cope with this difficult event.
What are the Risks of Completing the Survey?
The main risk to mothers is simply that remembering a loss can be emotionally difficult. To protect mothers who participate, this survey is confidential. In addition, this study, like all research studies, was reviewed and approved by the Institutional Review Board at the University of Michigan (HUM00023103). You may choose not to answer a question or may stop the survey at any point. Message board staff have given us permission to post this survey, but they will not see any of your individual answers.
What are the Benefits?
There are no direct benefits to you from completing the survey, but your responses will help us to develop programs for other parents who have similar losses in the future. It is estimated the survey will take about 10 minutes to complete.
Can I Contact the Researcher or the University of Michigan if I have Concerns or Questions about the Study?
Yes. You may email the Primary Investigator at ktgold@umich.edu (University of Michigan, Department of Family Medicine, Department of Obstetrics & Gynecology) or you may contact the University of Michigan Institutional Review Board at 734-763-4768.

Research Survey: Experiences Receiving Stillbirth/Perinatal Loss Diagnosis

got this in the email ladies so i am passing it on... please feel free to do the same.

Hi folks-

Suzanne Pullen here. I'm wondering if you would be willing to forward this email and link about a study I am doing involving parents who have had a loss to anyone you think might be interested.

https://www.surveymonkey.com/nld

As you may know, I am a bereaved parent who had a stillbirth three years ago. I am currently co-conducting a survey about medical bad news delivery and the communications between patients and care providers about their diagnosis. I am specifically hoping to reach parents who have had a stillbirth, neonatal death (death of a child within 28 days of birth) or a pregnancy loss.

We are hoping to learn more about this kind of communication and offer insights to care-providers about the effects of these interactions. Data collected from this confidential survey will be used for completion of a course project in the master’s program at San Francisco State University. The survey is confidential and should take approximately 25 minutes to complete.

If you have any questions, I would be happy to answer them. I can be reached by email at spullen@sfsu.edu.

I have attached a copy of the survey announcement, in case you would like flyers to post or circulate.

I also have hard copies of the surveys and if you send me an email with the street address, I would be happy to mail them to you.

I send my sincere thanks for considering helping get the word out about this study,

Suzanne Pullen
spullen@sfsu.edu
www.surveymonkey.com/nld

If you like, you can also post a link to the survey on a website by pasting this link:

Click Hereto take a survey on neonatal loss

Stillbirth Research Survey

hope you are all doing well. thought i would share something. this came into my inbox this morning i am sharing it please pass it on and in the box where it asks where you heard about the survey please put this blog. it is just so that Peggy knows where you are coming from. please feel free to pass the info on.


thanks.

From: Peggy Lambert Peggy.Lambert@mail.wvu.edu

Subject: Re: Help

Hello,
I am a nurse having worked 15 years in Labor and Delivery and now doctoral candidate at West Virginia University. Would your website be willing to post the link to my survey about stillbirth interventions in the forum? Participation would assist me in learning more about what interventions were important to women at the time their baby died and what feelings they experienced then and currently. This research is intended to improve the care provided to women at the
time of stillbirth.

The survey is online and will take about 30 minutes
to complete. If you have any questions, don't hesitate to write or
call me. For your review, the survey may be found at:
www.surveymonkey.com/plf


Peggy Lambert Fink, MSN, FNP-C
plambert@wvutech.edu
(304)465-1496