Sunday, April 20, 2008

Research Survey: Experiences Receiving Stillbirth/Perinatal Loss Diagnosis

got this in the email ladies so i am passing it on... please feel free to do the same.
Hi folks-

Suzanne Pullen here. I'm wondering if you would be willing to forward this email and link about a study I am doing involving parents who have had a loss to anyone you think might be interested.

As you may know, I am a bereaved parent who had a stillbirth three years ago. I am currently co-conducting a survey about medical bad news delivery and the communications between patients and care providers about their diagnosis. I am specifically hoping to reach parents who have had a stillbirth, neonatal death (death of a child within 28 days of birth) or a pregnancy loss.

We are hoping to learn more about this kind of communication and offer insights to care-providers about the effects of these interactions. Data collected from this confidential survey will be used for completion of a course project in the master’s program at San Francisco State University. The survey is confidential and should take approximately 25 minutes to complete.

If you have any questions, I would be happy to answer them. I can be reached by email at

I have attached a copy of the survey announcement, in case you would like flyers to post or circulate.

I also have hard copies of the surveys and if you send me an email with the street address, I would be happy to mail them to you.

I send my sincere thanks for considering helping get the word out about this study,

Suzanne Pullen

If you like, you can also post a link to the survey on a website by pasting this link:

Click Hereto take a survey on neonatal loss

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